Steps to take to manage the sandwich
Biggest hurdle is sense that only you can help
Caregivers are reluctant to take care of themselves
March 26, 2005
ANDREA GORDON
FAMILY ISSUES REPORTER
Caroline Tapp-McDougall was raising three kids and working full-time when her
mother was disabled by a stroke more than four years ago. Their lives changed
forever, the household was thrown into chaos and Tapp-McDougall faced
"superhero" responsibilities.
"I was in react mode all the time," says the Toronto writer, who drew on her personal experience to write The Complete Canadian Eldercare Guide.
Like most people faced with a parent's sudden health crisis, she wishes she had been better prepared, instead of having to make decisions on the fly. And while you can never completely be ready for a parent's decline, she does suggest steps to take that can make it easier when it happens.
Start by talking with parents, while they are
healthy and active, about what their wishes would be, should they become
physically or mentally impaired.
That includes discussing financial resources for future care, and how you both would feel about living in the same house.
It may be difficult and uncomfortable, and some may resist the discussion, but they may also be relieved once the subject is raised.
"My take is that a bit of awkwardness now will save no small amount of guesswork, angst and hard feelings in the long run," Tapp-McDougall says in her book.
Raymond Applebaum, executive director of Peel Senior Link, a non-profit provider of support services for seniors living on their own, notes that talking ahead of time also helps your parent, because most hate the idea of putting stress on their kids and want to do whatever's necessary to alleviate the strain.
"Knowledge and planning ahead is power."
Here are some other tips to help balance the needs of parents while you are raising a family:
Once there are signs that a parent may need support,
make a care plan by establishing specifically what help they need — occasional
transportation to the doctor, perhaps, or help managing their finances or with
personal hygiene. Watch for clues they may need more help than they want to
admit. It can be food rotting in the fridge, a home falling into disrepair,
signs of loneliness or a fall.
Seek outside help. An assessment from a professional
such as a physician, social worker,
home-care agency
or public health nurse can help determine the level of care needed and give you
access to resources in the community.
"I think the most important thing men and women need to know is there's lots of support out there for them," says Lynne Gallagher, co-ordinator of caregiver education services with the Family Services Association of Toronto.
A supportive living environment means problems can be caught before they reach the critical stage. For example, Peel Senior Link has seven buildings in Brampton and Mississauga in which it provides supportive housing to low-income seniors, including checking in on clients every few hours, assistance with medication, personal care such as showering, light housekeeping and laundry and food preparation. They also provide an avenue to access additional resources such as Meals on Wheels or help for dementia.
Involve other family members and friends in care
wherever possible. Spreading the load reduces the risk of caregiver burnout and
helps you attend to your children. And an outside person can help break down the
tasks into manageable pieces and decide how to delegate them.
If your parent believes you are the only one who can and should help them, ask someone in the community whom they respect to help them understand the value of drawing on other resources.
Seek support through a caregiver network that
conducts meetings or is accessible online. Sharing frustrations and fears with
others who understand can help you come up with practical solutions for coping.
It can also alleviate stress and give you a forum to express frustration and
fear. Finding outside support is also positive for your family because they
won't have to bear the brunt of your anxiety. If you don't have time to attend a
support group, buddy up with someone who's been through it and grab an
occasional coffee or telephone conversation.
Don't treat your parents like your children,
respecting their right to make decisions, even if sometimes it means taking
risks. "It's a different nurturing process," says Applebaum, because, at the end
of the day, seniors should have the right to make their own decisions for as
long as they are able.
Be honest with your children about a grandparent's
disability, but don't push them to become more involved than they are willing.
Children have different thresholds that will change depending on their ages,
Applebaum notes, and it's a natural phase of development to not want to hang out
with older family members. He suggests parents continue to offer their kids the
opportunity to visit or be involved, without pushing, and lead by example. "It's
about modelling, but don't throw your expectations on other people."
Keep track of how you spend your time and emotional
energy so you can decide whether it is being fairly distributed. Tapp-McDougall
says she writes everything down so she has a real picture of whether anyone is
being short-changed, including herself. Families get resentful not just of the
actual time, but the headspace and emotional investment in an older relative.
It's not selfish to look after yourself. One of the
byproducts of guilt is that it's hard to draw boundaries and accept the fact you
can only do so much.
Burnout takes six to 18 months to set in. Watch for
red flags that might signal you're heading for trouble, including: symptoms of
depression, such as difficulty sleeping or social withdrawal; lingering aches
and pains; feelings of being trapped; feelings of frustration and anger; being
in a state of constant distraction, and difficulty staying focused.